COMMUNICATING THE SEVERE DIAGNOSIS – PSYCHOLOGICAL, ETHICAL AND LEGAL ASPECTS

Authors

  • Andrada PÂRVU MD, PhD, senior specialist in hematology, “Ion Chiricuta” Oncological Institute, Department of Hematology; Senior lecturer PhD, Department of Hematology, “Iuliu Hațieganu” University of Medicine and Pharmacy, Cluj-Napoca, Romania. Email: parvuandrada@hotmail.com. https://orcid.org/0000-0002-5152-6040
  • Adina REBELEANU Associate professor PhD, Faculty of Sociology and Social Assistance, Babes-Bolyai University, Cluj-Napoca, Romania. Email: adina.rebeleanu@ubbcluj.ro. https://orcid.org/0000-0002-4471-0333
  • Anca BOJAN MD, PhD, senior specialist in hematology, “Ion Chiricuta” Oncological Institute, Department of Hematology; Senior lecturer PhD, Department of Hematology, “Iuliu Hațieganu” University of Medicine and Pharmacy, Cluj-Napoca, Romania. Email: anca.bojan@iocn.ro. https://orcid.org/0000-0003-1523-3133

DOI:

https://doi.org/10.24193/subbphil.2019.2.09

Keywords:

diagnosis communication, coping, law, doctor-patient relationship

Abstract

From a psychological standpoint, communicating a severe diagnosis entails more than just naming a disease, it is a complex process with a number of stages: finding out what the patient already knows about the illness (some of which might be wrong, and thus psychologically detrimental), informing the patient while answering any questions (about the illness itself, the treatment, prognosis, recovery period, etc.) and last but not least, providing a minimum of psychological support depending on the patient’s reaction. Romanian law regarding doctor-patient relationship and communication is modeled on the Anglo-Saxon model centered on patient autonomy and direct communication with the latter if the patient desires to know the truth about his condition. If this is not the case, the patient can name a proxy for doctor-patient communication. There are three legal documents that clarify these aspects: Law of Patient Rights, Medical Association’s Ethics Code and the Health Reform Law. The first two are conflicting on several aspects that we will discuss in this paper. The few studies on doctor-patient communication published in Romania reveal that there is no unitary methodology in this field. The doctors attest that often times the patient’s family, when faced with severe illness turn to the traditional model of communication, i.e. they desire to know the severe diagnosis first and pressure the physician to hide the truth form the patient, contrary to the letter of the law. The aim of this paper is to discuss the issue of communicating severe diagnosis in nowadays Romania in a very complex context: 1. The model of doctor-patient relationship and communication has changed after communist era (from paternalistic to partenerial); 2. Conflicting and missing issues in laws; 3. Laws based on patient’s autonomy principle in a traditional society based on another model of taking care (the patient is part of a family nucleus and the family wants to interfere into the medical communication process). Communication has only recently entered the curriculum of some medical schools in Romania. The doctors questioned as part of a study reveal that they‘ve learned to communicate a severe diagnosis by trial and error. This being said we recommend the inception of practical doctor-patient communication courses that could lead to improving doctor-patient relationships, communication of the diagnosis being their foundations.

References

Arora N, Interacting with cancer patients: the significance of physicians’ communication behavior, Soc Sci Med, no. 57, vol.5, 2003, 791–806.

Baile WF, Buckman R, Lenzi R, Glober G, Beale EA, Kudelka A, SPIKES—a six-step protocol for delivering bad news: application to the patient with cancer, The Oncologist, vol. 5, no. 4, 2000, p. 302–311.

Benbassat J, Pilpel D, Tidhar M, Patients’ preferences for participation in clinical decision-making: a review of published surveys, Behav Med, nr.24,1998; p. 81-88.

Blanchard CG, Labrecque MS, Ruckdeschel JC et al., Information and decision-making preferences of hospitalized adult cancer patients, Soc Sci Med, nr.27,1988, p.1139-1145.

Bre´dart A, Bouleuc C, Dolbeault S, Doctor-patient communication and satisfaction with care in oncology, Curr Opin Oncol, no. 17, vol.4, 2005, 351–354.

Cassileth BR, Zupkis RV, Sutton-Smith K et al., Information and participation preferences among cancer patients, Ann Intern Med, vol.980, nr.92, p.832-836.

Colegiul Medicilor din România, Codul de Deontologie Medicală, disponibil la: http://www.cmb.ro/legislatie/codulDeontologic/cod.pdf [accessed 20.09.10].

Davidson JR, Brundage MD, Feldman-Stewart D, Lung cancer treatment decisions: patient’s desires for participation and information, Psychooncology, nr.8, 1999, p.11-20.

Davison BJ, Degner LF, Morgan TR, Information and decision-making preferences of men with prostate cancer, Oncol Nurs Forum, nr.22, 1995, p.1401-1408.

Degner LF, Kristanjanson LJ, Bowman D et al., Information needs and decisional preferences in women with breast cancer, JAMA, nr.18, 1997, p.1485-1492.

Dunsmore J, Quine S, Information, support and decision-making needs and preferences of adolescents with cancer: implications for health professionals, J Phychosoc Oncol, no. 13, 1995, p. 39-56.

Fields SA, Johnson WM, Physician-patient communication: breaking bad news, W V Med J, nr.108, vol. 2, 2012, p. 32-5.

Fong Ha J, Longnecker N, Doctor-Patient Communication: A Review, The Ochsner Journal, vol.10, 2010, p.38–43.

Girgis A, Sanson, Fisher RW, Breaking bad news. 1: Current best advice for clinicians, Behav Med, nr.24, vol.2, 1998, 53-9.

Gorog I, Boala incurabilă şi terminală - atitudini şi asistenţă în România de azi, [rezumatul tezei de doctorat], Universitatea Babeş-Bolyai Cluj-Napoca, 2010. Disponibil la: http://doctorat.ubbcluj.ro/sustinerea_publica/rezumate/2010/sociologie/Gorog_ileana_ro.pdf,[accessed 20.09.2011].

Hoffman JC, Wegner NS, Davis RB et al., Patient preferences for communication with physicians about end-of-life decisions. SUPPORT investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment, Ann Int Med, nr.127, 1997, 1-12.

Kubler Ross E, On death and dying, Elena Francisc Publishing, 2008.

Lee A, Wu HY, Diagnosis Disclosure in Cancer Patients –when the Family says “No!”, Singapore Medical Journal, Vol. 43, nr.10, 2002, p.533-538.

Ley P, Giving information to patients, Social Psychology and Behavioral Science, Eiser JR, editor. New York: John Wiley, 1982, p.353.

Lobb EA, Butow PN, Kenny DT et al., Communicating prognosis in early breast cancer: do women understand the language used?, Med J Aust, no. 171, 1999, p.290-294.

Loge JH, Kaasa S, Hytten K, Disclosing the cancer diagnosis: the patients' experiences, Eur J Cancer, no. 33, vol.6, 1997, p.878-82.

Meredith C, Symonds P, Webster L et al., Information needs of cancer patients in West Scotland: cross sectional survey of patients’ views, BMJ, nr.313, 1996, p.724-726.

Moşoiu D. Comunicarea diagnosticului şi prognosticului în cancer.Pregătirea, percepţii şi practici ale medicilor oncologi, hematologi şi de îngrijiri paliative, aşteptări ale populaţiei şi cadrul normativ [teză de doctorat], Universitatea de Medicină şi Farmacie “Iuliu Haţieganu”, Cluj-Napoca, 2009.

Nanu A, Georgescu D, Voicu V, Ioan B, Locul şi relevanţa prevederilor legale în contextul practicii medicale din România, Revista Română de Bioetică, vol. 9, no. 4, p. 31-42.

National Cancer Institute, Basic Communication Skills, available at: http://www.cancer.gov/cancertopics/pdq/supportivecare/communication/healthprofessional/page5, [accessed 04.01.2013].

Olarte, JN, Gracia G, Cultural Issues and Ethical Dilemmas in Palliative and End-of-Life Care in Spain, Cancer Control, vol.8, nr.1, 2001, p. 47-52.

Parker PA, Baile WF, de Moor C, et al., Breaking bad news about cancer: patients' preferences for communication. J Clin Oncol, 19 (7): 2049-56, 2001

Pârvu A, Optimizarea transfuziilor sanguine (aspecte legate de crearea unui model predictiv al necesarului transfuzional şi de consilierea psihologică a pacienţilor leucemici politransfuzaţi) [teză de doctorat], Universitatea de Medicină şi Farmacie “Iuliu Haţieganu”, Cluj-Napoca, 2009.

Pellegrino ED, Thomasma DC, The Good of Patients and the Good of Society: Striking a Moral Balance, Public Health Policy and Ethics, editor Boylan M, Kluwer Academic Publishers, 2004, p.17-37.

Sgreccia E, Bioetique et Medicine, Manuel de Bioetique. Les fondements et l’éthique biomédicale, Ed. Manu-Edifo, 2004, p. 197-229.

Spencer S, Carver C, Price A, Psychological and Social Factors in Adaptation, Holland JC, (Ed.), Psycho-Oncology (211-212). New York: Oxford University Press (1998).

Sutherland HJ, Llewellyn-Thomas HA, Lockwood GA et al., Cancer patients: their desire for information and participation in treatment decisions, J R Soc Med, nr.82, 1989, p.260-263.

***Legea nr. 46/2003, Legea drepturilor pacientului, available at:

http://www.dreptonline.ro/legislatie/legea_drepturilor_pacientului.php, [accessed 20.08.11].

***Legea nr. 95 / 14 aprilie 2006, Legea privind reforma în domeniul sănătăţii. Available at: http://www.cdep.ro/pls/legis/legis_pck.htp_act_text?idt=72105, [accessed 04.01.2013].

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Published

2019-08-20

How to Cite

PÂRVU, A. ., REBELEANU, A. ., & BOJAN, A. . (2019). COMMUNICATING THE SEVERE DIAGNOSIS – PSYCHOLOGICAL, ETHICAL AND LEGAL ASPECTS. Studia Universitatis Babeș-Bolyai Philosophia, 64(2), 153 –. https://doi.org/10.24193/subbphil.2019.2.09

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